I can’t tell you the immediate bond I feel when I meet a family like the one I did today. Kindred spirits. We immediately know and share a crazy love and story. We know the challenges each day can bring and I could tell that this mom and I have the same outlook – there is more good than bad. MUCH MUCH MORE. And I could tell by the look in her eyes how much she adores her daughter. I love being a part of this little group of people. I love meeting eyes with another mom of a child with DS and “knowing” everything with one glance. We have both cried, laughed, prayed, labored and fought for our children on a daily basis. We have had sleepless nights worrying about therapy and medical procedures. We have cried when someone has said something offensive and we have worked endlessly each day to make sure our children know how incredible they are and how much we love them. I may be “all alone” in St. Louis, but when I meet women like her, I am reminded of a much larger family that we are a part of. It’s an honor to be a part of this family and I wouldn’t’ have it any differently.
Jack and his buddy Andrew
As parents of kids with disabilities we have a choice to make each day. To live life to the fullest, enjoying our children and celebrating the things that they can and will do or we can mourn something that we can’t change. I love my son and I choose to celebrate his life and his extra chromosome. There are def days for mourning and sadness, but those get less and less as the days go by. Most of our days are spent with much laughter and over-flowing love. If you are a new mom – be encouraged. You are in for an incredible journey – let yourself enjoy it.
Here is Jack with 2 of his buddies: Aiden and Andrew
PS – Jack turned 2 this past Wednesday!!!!!!!!!!!!! Birthday party tomorrow. Can’t wait to celebrate his life with many close friends!!