Thursday, December 31, 2009

Baby's 1st Christmas!!

Christmas 2009

What a wonderful Christmas it was this year. I have always enjoyed Christmas, but this year it was different. I think being a mom and having a baby in the house is the reason why. It just means more. I was constantly reminded of my love for my 2 boys and couldn't have been any happier. My parents came into town from Chattanooga, TN on Wednesday, December 23rd. They were able to keep Jack Thursday while we went to work. When Michael and I got home, Jack was happy, dinner was served and family was all around. It was so nice to have them in St Louis. Friday, Mom and I took Jack out and we had lunch together and did some Christmas/ grocery shopping. That night we had a true southern dinner: country fried steak, homemade macaroni and cheese, pinto beans and fried okra! Not to mention, coconut cream pie for dessert..mmm :) It was so nice to spend time with them and to watch them hold and play with our son. I was so proud and content. We opened gifts with them on Sunday Morning:
 and more gifts

until Jack was in a sea of paper:

Jack so enjoyed his time with Grammy and Papa:

and we were all sad to see them leave on Monday, December 21st.  It was a wonderful visit, as I have 2 of the most wonderful parents in the world!!!  Thanks for coming up mom and dad!!

Christmas Eve, we all stayed home and watched Love Actually and Christmas Vacation and then went to church with our neighbors and friends, Jamie and Eric. It was a great time. I loved being in church with my 2 boys and singing Christmas carols and listening to the Christmas story. I couldn't help but think about Baby Jesus in the manger as I held my baby and listened. What a miracle and what a humble beginning for such a man.  I loved holding Jack during the service and singing those old songs to him...I was completely content.  Christmas morning Jack woke up at 6:00 and so I went into the nursery to feed him. I was planning to go back to bed to snuggle with Michael, but Michael woke up too and headed downstairs to make coffee.  After coffee, we turned on the video camera and started opening gifts:
It was so much fun!  Jack had no clue what he was doing, or what all the toys were, but he loved the paper and bows!! :)  We opened gifts from many people, Granpa and Busia, Gramma, Santa :), and many friends.  What a wonderful day.  We ate a huge breakfast and then had dinner that evening with close friends of ours, Jamie and Eric.  It was a very Merry Christmas!  I have so much to be thankful for.  What a good year it has been.  Thanks to all of you who have been a part of our lives and who have loved Jack alongside of us.  What a wonderful "vilage" we have to help us rear and love our son.  Thank you all and we hope you have a very Happy New Year!

Tuesday, December 29, 2009

Thinking of Castian and pieces of perspective

My life has been put into perspective today. Today is Tuesday, December 29th and a little 3 month old boy with Down Syndrome is about to have open heart surgery for heart defects in Canada. I know this because his mom, Arlene, is part of a social network called BabyCenter that I am a part of. I have met many women through this website…women who were pregnant the same time as me and women who have children with Down Syndrome.

Arlene is one of those women. I have read her posts regarding her little boy, Castian. She has been in the hospital since he was born (except for 4 days) waiting for this surgery. Surgery has been moved due to Castian having colds, fevers and due to the hospital not having enough space. She is ready for this surgery. He needs this surgery to survive and he needs it so he can go home and begin to have a “normal” infant existence with his 2 older sisters and his dad. I think back to when Jack was in the hospital for his duodenal atresia repair for 1 week or for when we were in the hospital for croup a few weeks ago and to when we will be in the hospital again Jan 29th for his hernia repair…all of those times I hated being there. I hated not having him home where it was comfortable and warm and safe. Where he wouldn’t be poked and prodded at. I hated not being able to hold or feed him without restriction…or worse of all not being able to hold or feed him at all. However, I knew all of those instances were absolutely necessary. And today I think of Arlene. She has not been home in quite some time and Castian was only at home for 4 days. She hasn’t seen her 2 daughters in quite a while. And so I pray for Arlene and Castian today. I pray that Arlene would have peace and strength. I pray that she feels how much love and how many prayers are being sent her way. I pray that God would heal little Castian’s heart. I pray that surgery would go smoothly and that he would be back in his room this evening feeling the joys of the start of recovery. I pray that he would wake up and smile…breathing easier and better.

I remember going to the Cardiologist the week after Jack was born. We had just found out that he had Down Syndrome and the 1st thing on the agenda was to see a Cardiologist. I remember waiting with Michael and holding Jack as they performed the tests. I remember trying to keep little Jack still during the ultrasound. And I remember hearing from the doc “He has a completely normal heart…no defects”. The doctor, Michael and I cried in celebration. I thank God for that news. I thank God that our Jack didn’t have to go through what little Castian is going through now. But I still feel Arlene’s pain. I know what it is to be a mom and what it is to have impossible, uncontrollable love for your son. And so I pray for them today. I cry for them today and I wait eagerly to hear how the surgery goes. And I am thankful for the piece of perspective given today…when everyone is complaining about the weather, having to go back to work, being tired, traffic, etc….when I hear all of these things, I am remembering a little boy in Canada fighting for his life and all the other things don’t even matter anymore. May God heal you Castian. And may today be a very, very good day for you and your family. I will hug my little boy and kiss him even more tonight than last night because of you. My prayers are with you both.

Monday, December 21, 2009

The Creed of Babies with Down Syndrome

The Creed of Babies with Down syndrome

My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace

***Edited to add that the author of this Creed is unknown. I wish I could take credit, but I can't. It is well written and very beautiful to read**

Monday, November 23, 2009

A vent from a protective mother

He’s not “Downs”

I get so tired of hearing people refer to Jack as “Downs”…People say things like, “well, Downs’ kids” or “since he’s downs”..etc.

He is not DOWNS! He is Jack. To be specific, he is Joseph Steven McKenzie and we call him Jack. He is our little boy, the first grandson on my husband’s side and the second grandson on mine. He is our first child and the love of our lives. He is funny and sweet. He loves faces and he loves to talk and touch things. He loves his hands and he enjoys sucking his thumb. He loves to laugh and is ticklish on his sides and thighs. He has the most contagious smile and I can already tell that he has a huge heart. He is so much more than his diagnosis. He loves to look at people and colorful toys. He loves to be held and cuddled. He gives us life and beauty…he gives us purpose and joy…he gives us love and snuggles and laughter. My heart overflows each day when I look at him. And, I too, don’t see “it”. I don’t see the Down Syndrome…all I see is My Jack, my beloved, wonderful and beautiful son. I don’t think it’s fair, but I also know that he is perfect just the way he is and that I wouldn’t change a thing about him, now or never. I am concerned about the future..not for me, but for him. I want him to be happy and healthy and have a wonderful life and I believe he will. Some days I cry, but most days, I don’t even think about it. On hard days, we are caught between 2 extremes constantly…not understanding and understanding…not thinking it’s fair and not wanting to change a thing. The last thing I or my husband want to hear is someone identify our little boy by his diagnosis. So please, please, please…don’t refer to our son as “downs”. That is not who HE is. He is Jack. And he happens to have a genetic disorder called Down Syndrome.

Monday, November 9, 2009

4 Months old and Halloween

Well, I can't believe it!  Our little Jack is 4 months old.  Wow how time flies.  He is such a cutie. Jack is holding his head up well now and turning over from back to tummy all the time.  He pivots around to get the toy he wants and is constantly reaching for our faces and toys.  When I read books now, he looks at the pages and especially loves books with mirrors and music. He is smiling and laughing and is ticklish.  He is so precious and I couldn't be more proud to be his momma.

Jack started his new Daycare, Childgarden Child Development Center and we love it.  He seems to be stimulated and happy there. Their website is if you are interested.  We really love it.  Here is a blurp about them:

Founded in 2000, Childgarden Child Development Center is a joint program of Easter Seals Missouri and the St. Louis Arc.  Childgarden CDC has a long history of exceptional inclusive early education.  This means that children come to Childgarden from a wide range of backgrounds and with a wide variety of abilities.  Research has consistently shown that children with disabilities and those without thrive in inclusive educational environments.  Children with disabilities learn new skills and children without disabilities learn to solve problems creatively and compassionately.  More than 200 children from around the metropolitan area and 37 different zip codes come to Childgarden CDC for quality early education and therapy services.

We have been so pleased with Jack's teachers, LaCreda and Charlene.  Both have been with Childgarden for over 8 years and Jack seems to really enjoy them.  

He also has 2 new therapists; Teddie is his Occupational Therapist and Katie is his physical therapist.  Teddi and Katie are on staff at Childgarden.  Therefore, they can be sure that the teachers are implementing therapy in a variety of settings throughout the day.

Jack gets therapy every week.  Both Teddie and Katie are inlove with him..he is such a flirt (just like dad) :)

A Note from Katie:

I just finished working with Jack today (11/11/09) and there will be a note in his cubby.  We had to do a 2 part session after Jack sucked his thumb and put himself to sleep during the first part- I had plenty of time today so I went back after lunch and we finished up.  I hate to try to make him work when he is obviously tired.  I am so impressed with his progress-he is getting so big and strong!

Have a great afternoon!

Michael has class 4 nights per week and all day on Saturdays right now, so Jack and I are getting a lot of alone time, which is just fine.  I usually pick him up from day care around 4:30 and we head home.  I get dinner ready for Michael and then feed Jack, a little play time with Jack, bath time with Jack, storytime and then bed time by 7:30.  Michael usually gets home around 8:30, so we have a little time in the evenings together. I try to wake Jack up around 9:00 pm for one more feeding, which he usually sleeps right through.  He is in his crib now for the most part.  I think he is sleeping better and we are too, but it is really hard for me.  I love waking up and seeing him right beside us in his bassinet, but he was outgrowing it was time to move on. 

Jack just got 4 vaccines last week and I got my H1N1 vaccine today!  I was so happy to finally get it.  Michael will get his next week.  Jack can't get vaccinated for seasonal or H1N1 flu until he is 6 months December. 

For Halloween, we stayed at home and just took it easy.  Life is so packed for us right now that we have to take moments on the weekends to just chill as a family.The day before Halloween, Jack's little classroom had a Halloween Party and I went to it.  THey combined the toddlers with the babies in the indoor play room.  Here are some pics from it:

please note: Jack spit up all over his pumpkin outfit, which is why he is wearing regular clothes :(

Here is what he was wearing:

We are getting our first family portraits taken on November 15th and I can't wait!  I am sure it will be fun. I hope we can little Jack to smile for the camera.

Here are some recent pics of our little bit:

Jack will have surgery again on December 18th for the hernia he has developed since his last surgery.  It should be an outpatient surgery and the surgeon doesn't expect any complications.  Please keep him in your thoughts and prayers that day and Michael and me too...the anesthesia part is always very hard.

We are heading to Denver, CO again this year for Thanksgiving and can't wait to be with family.  Then, my parents are coming up in December for a little Christmas visit and we are hoping to make it out to Bellingham and Seattle in the spring.  We want everyone to see our little Jack!  He truly is a blessing.

I'll continue to keep you posted as life continues to move along.  Thanks for listening!!

Wednesday, October 14, 2009

Health Concerns

Upon finding out Jack's diagnosis, the pediatrician immediately wanted some tests run.  50% of children who have Down Syndrome have heart defects, so we went to the Cardiologist that very next week.  After the Echocardiogram and ultrasound we were pleased to find out that Jack's heart was completely normal!  This was and is such a blessing!  We were so relieved.

Week 3 of Jack's little life rolled around and he ended up having surgery for duodenal atresia, which is an obstruction in the bowel.This started because Jack wasn't eating well and what he was eating was coming back up.  In the beginning, his pediatrician felt like I was over-reacting and he was just spitting up, but we continued to call and go in.  We knew something wasn't right.  Luckily, Jack threw up in her office and she told me to take him to the ER immediately.  After some testing, the docs found the obstruction.  I will never let go of my gut feeling again and I implore all families to do the same!

The physicians and staff at St. Louis Children's hospital were wonderful.  They were efficient, kind, informative and caring.  We felt we were in great hands.

Jack had his surgery on Friday, July 10th (he was just 18 days old).  He couldn't eat until Thursday, July 16th and we were able to  go home on Friday, July 17th - just in time for Micheal's Birthday on the 18th. 

Jack was such a champ during surgery and even afterward.  And once he was able to eat, he quickly jumped to 4 ounces per feeding within a week! 

We are so thankful to the staff at SLCH and to our families and friends, who supported and prayed for Jack during those weeks.  Thank you all very much!

Jack has since developed a hernia at his incision sight.  This means another surgery sometime in December of this year.  This will be an outpatient surgery and not near as serious as the other. 

Jack has also had an ear exam, which was completely normal!  He will undergo eye tests, spinal exams and thyroid testing each year starting in January.  We will be sure to keep you posted as those draw near.

Friday, October 9, 2009

Jack's First Week - Welcome to Holland

I was having a hard time naming this post.  This week was such a hard one.  I'll start with Wednesday, June 24th: 2 days after Jack was born and we headed home.  When we left the hospital to head home everything was seemingly fine. 

Jack still hadn't latched for more than a couple minutes in the hospital, but his weight was fine, so we were able to go home.  The pediatrician said that he would eventually "figure it out" (Breastfeeding) when he was hungry.  So, we didn't worry and went home.  I was so sore that moving around was quite difficult so I camped out with Jack downstairs in our house for the 1st few nights in order to avoid climbing stairs.

By Thursday, Jack was still not eating, and was looking quite yellow.  So, I called the DR. and she said to come in that he might have some Jaundice.

It was obvious to her that he was jaundiced and she sent us (my mom and I) to the Lab at Children's hospital to get his bilirubin level drawn to see how high his level was.  (Everyone’s blood contains bilirubin, which is removed by the liver. Before birth, the mother’s liver does this for the baby. Most babies develop jaundice in the first few days after birth because it takes a few days for the baby’s liver to get better at removing bilirubin).  Jack's level was quite high, so we had to get photo therapy lights delivered to our home and if he wouldn't take to breast, we were going to have to give him formula and I would have to pump.

The DR. also mentioned on that Thursday that she thought Jack was "floppy" and she asked me, "has anyone spoken to you about the way he looks?"  I couldn't believe she asked that question!  I was outraged...who asks a question like that. I, of course, said no.  He looked beautiful to me and then she went on to say that she wanted him tested for Down Syndrome. Michael was at work and my mom was with me at the appointment and I remember thinking..."what?? She's crazy...he's fine"  So, at the same time we got his bilirubin tested, they took his blood for a chromosome analysis.

Jack still wouldn't take to breast, so we had to give him formula bottles until I could rent a pump.  I rented a pump the next day and have pumped for Jack ever since and still do.  We still try daily to nurse, but he is much too used to the bottle now.(side note - he finally latched when he was 5 months old - so it can be done)

We figured out the pumping thing and fell more inlove with Jack.  We both held him so tightly those next 2 days not knowing what the results of that test would be.  We couldn't see it...he was just so beautiful and perfect (he still is, by the way!).

My parents left Saturday morning, and right after they left, we got a phone call from our then pediatrician asking us to come into the office to talk.  Our stomachs dropped.  The results weren't supposed to be in for a week...and we weren't ready for the answer.  The ride to the office was silent.  I sat in the back with Jack while Michael drove.  I was praying for strength in my head.

We got there and the doc made small talk about Jack's eating, nursing and bilirubin level (which was not going down).  And then she finally gave us the news: Jack's test was positive for Trisomy 21.  This is commonly called Down Syndrome.  This meant that Jack was born with an extra 21st chromosome..he had 3 instead of 2.  Unfortunately, having this ONE extra chromosome sets him up for all sorts of health issues: heart defects, intestinal abnormalities, sight and hearing problems, etc.  The list was long as she went through them.  Then she said a horrible thing...his life expectancy.  She said that he would live to be in his 30s.  Hearing that was the worst part of it.  We later found out that her information was expectancies are much longer now and with the right interventions, he would live much longer.  We changed pediatricians.

Michael and I got into the car and cried.  We just cried and cried.  That entire Saturday was filled with our tears.  We held our baby boy and wept.  We wept because we didn't understand, we didn't know what to expect, we didn't know what health problems he had or would have, we didn't want to out-live him, we didn't want him to have a difficult life or be made fun of, we didn't want him to ever feel small or different.

Let me interrupt this for a moment to say that when you have a child...your immediate "MOMMA BEAR" exists.  You live to protect your child from all bad things..all things that could hurt or wound him.  But this was something we couldn't protect him from...something we couldn't change and it was so hard.  You love your child so much that you want the absolute best for them...and at that the beginning you are just sad.

The days past and as we told our families first, and friends second, and did a lot of research.

He was and is our son.  He is our heart and soul and we love him.  I can't imagine not having him in our lives.  And although it was hard to find out the way we did, I am glad it happened that way.  We had our entire pregnancy and those first 5 days of his life to just love him without any pressures or concerns or weariness or research or special appointments.  And after the initial shock of the diagnosis, we were able to have 'just Jack' and our little family.

We will be a little different from our friends who have kids and we will be a little more protective and we will do a little more studying and exercises, and there will be therapy and perhaps different sports, but we will be together and we will love and that's what matters.

I will attach a story, "Welcome to Holland"  It is from a mother who has a child with a developmental delay to express those initial emotions.  I will say that we love Holland and are glad we are here.  I am sure Italy is wonderful, but hey...Holland isn't too shabby! :)


Emily Perl Kingsley.

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Welcome Baby Jack!!

A baby will make love stronger, days shorter, nights longer, bankroll smaller, home happier, clothes shabbier, the past forgotten, and the future worth living for

About my 37th week, I started to feel much more pressure and I remember going to our appt that week and the doctor saying we might have a baby very soon!  I was so excited especially after our false alarm...which I won't embarrass myself by sharing.

I felt great that week..did a lot of cleaning.  Sunday, June 21st we went to Ted Drewes for some frozen custard with a couple from our child birthing class, Gilly and Andrew.  They were a week ahead of us in their pregnancy and Gilly and I were huge!  I remember ordering a "Dutchmen" concrete (chocolate custard, butterscotch, almonds and hot fudge) and eating every single bite.  Then the 4 of us went on about a 2 mile walk...well, actually the boys walked, Gilly and I waddled. :)

We got home around 9:00 and were both exhausted.

Side note: St. Louis in June is MISERABLE!! It's 100% humid and HOTTTT!  So, after our stroll, Michael and I were drenched in sweat and desperately needed a shower.

We eventually went to bed, and I remember around midnight feeling a sharp pain in my abdomen...not painful really...just alerting.  So..I drifted off to sleep and around 1:00 am..the same thing.  I thought, "I shouldn't have eaten all that ice cream" and tried to go back to sleep.  However, those sharp little pains were coming every 10 minutes and by 5:00 am they were coming every 6 minutes. I was totally calm...I woke Michael up and told we kept timing the contractions and at 6:00 Am they were between 5-6 minutes apart.  So, Michael and I let our employers know that we were going to most likely have a baby!  I took a shower and calmly packed my things.  At 9:30, we decided to head to the hospital and the triage unit confirmed that we were in labor.  I was 4 cm dilated and 80% effaced, with contractions 5 min apart.  They said I could walk around to speed up the process.  So I walked, and walked and walked! I bet I walked 5 miles that day going up and down those halls in my gown.  People were laughing at me and my doctor couldn't believe how fast I was walking.  But it really helped handle the pain.  At around 2:30...I was 7 cm dilated and fully effaced, but my water hadn't broken.  My contractions were 3-4 minutes apart and getting much stronger.  Around 3:45 I allowed Dr. Parks to break my water.  Immediately afterward, the contractions intensified and the pain made the other contractions look like toe stumps in comparison. I was bouncing on a ball and I finally yelled, " I have to push!"

Then my parents arrived.  Perfect timing.  They drove all the way from Chattanooga and left at 8 am that morning and my mom said she knew that our baby was coming!

 So I got off my ball, into the bed and Michael took one leg and the nurse took the other and at 4:51pm, our beautiful son entered our world! (FYI - pushing is very very hard!!)   I am pleased to say that I did this with no medication but with A LOT of effort!  I remember being absolutely exhausted and kind of in shock when he was finally born.

Jack was crying and getting cleaned up.  He received a high apgar score and was perfectly normal.

I remember holding him..thinking..."Oh my goodness...this is our son!" I had looked so forward to seeing what he looked like, and he was beautiful.  He had a little hair, big blue eyes and was fair in complexion.  He was perfect.

We tried nursing immediately, but he didn't seem to be interested.  So I kept trying and lactation came in, but he wasn't latching.  This didn't alarm us because we felt like he would get it eventually. But we also didn't know that he had Down Syndrome and was hypo tonic, meaning that his muscles are quite weak and latching would be difficult for him.

We stayed in the hospital Monday and Tuesday night, and I remember Monday night, after everyone had left, holding my son in my arms and just crying and thanking God that he was finally here and healthy and just wonderful.  I was just amazed. I couldn't believe that we had been blessed with such wonder and love.  And I couldn't believe how much I loved him!!! It was crazy.  I felt like there was so much love inside of me that I was going to explode! I remember telling Jack...promising him that we would always love him...that there was nothing he could EVER do to make us love him less and that we would always, always, always be here for him!

Before you were conceived
I wanted you
Before you were born
I loved you
Before you were here an hour
I would give my life for you
This is the miracle of life.
~ Maureen Hawkins

Our Family had a new member, and Michael and I were pleased.  No one mentioned anything to us in the hospital about the possibility of Jack having Down Syndrome and he looked like a typical baby to us, so we went home and began our life as a family.

"Sometimes," said Pooh, "the smallest things take up the most room in your heart."


Ironically, as I start this blog today...We found out that we were pregnant with our beautiful baby boy on Tuesday October 28th.  Our first OB appt. was on November 13th and we were about 6 weeks along at that time.
My pregnancy was completely normal.  Our first ultrasound we could see this tiny little pea of a baby and he already had a very strong heartbeat. Michael and I were overjoyed as we listened and were anxious to get through the 1st trimester.  My morning sickness happened at night, so Michael was on his own for dinner for quite a while.  He didn't mind this as he got away with eating tons of steaks and pork...he wasn't about to cook any veggies!

Through Christmas and New Years, my stomach grew as did our baby.  We had our 12 week ultrasound and our baby was still absolutely healthy.  We also had a "First-Look" ultrasound which measures different parts of the baby to determine if there are any abnormalities.  After the ultrasound is taken and your family history is taken they send you a sheet in the mail that explains your risk for any birth defect.  Our risk was incredibly low and based on what the sheet said, we didn't feel there was any further testing needed.  Our OB agreed and so we went on with our healthy pregnancy.

And now our little Jack at 20 weeks:

It's a boy!!!
We found out that our baby was a Boy on February 19th, 2009!!  We were both thrilled and when the above image popped up on the screen, there was no disputing it!  Michael had always said that his family only produced boys, so we weren't too surprised!  Immediately we named him Joseph Steven.  He is named after his grandfather on Michael's dad's side (Joseph).  Michael's family called his grandpa "Jack", so therefore, we call our little baby Jack!  His middle name, Steven, comes from both of our dads. So, the name was quite easy and we know that he walks in the footsteps of some amazing men.  What a legacy before him.

The weekend before we found out the sex is when I felt him move for the 1s time!  It was so amazing and magical!  Michael wasn't able to feel him for a few more weeks and toward the end, we would just watch my stomach move all around.  Jack was proving to be a kicker!  That is probably the main thing I miss about pregnancy - having him with me all the time and being able to feel his every movement...I LOVED IT!

The rest of our pregnancy went as planned.  My cravings included McDonald french fries, tomatoes, watermelon, ice cream, and very grilled hot dogs!  Towards the end, all I wanted was hot dogs!!     All in all, our pregnancy was pretty normal and enjoyable.  But I will say, those last 10 weeks, are not easy and you do fill like a blimp!
This is a picture from my baby shower at 33 weeks!  They were all trying to guess how big my tummy was with a piece of ribbon...they all over-estimated!!! SAD!

And here I am at the Race for the Cure...37 weeks preggo!
My friend and Co-worker, Laura, accompanied me.  And as you can see, I had started to "drop" at this point.  My appt on the 37th week revealed that I was starting to dialate and efface!  We didn't think Jack was going to wait for July 6 (the due date) to come!

We've started a Blog

I've been inspired by other moms who have started blogs for their families and especially their children who have Down Syndrome. So, I have decided that this will be a great way to share stories, pictures and updates about our little family. You can also post comments or questions. I am still learning about "blogging" but hopefully overtime this will become a great way for us to communicate since we are all scattered.

Let me know if you have ideas